tag:blogger.com,1999:blog-1113305524165042046.post2215733503933407932..comments2023-10-08T09:12:08.588-05:00Comments on Looking At the World Through Rose Colored Cancer: ... And Mostly The UglyEileenhttp://www.blogger.com/profile/11442325235793131536noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-1113305524165042046.post-65601330546766901412010-09-07T00:21:08.788-05:002010-09-07T00:21:08.788-05:00Oh this really IS ugly. And frustrating! Good fo...Oh this really IS ugly. And frustrating! Good for you for doing your research and being part of the decision making process regarding your treatment. It's bad enough that you can't stop this horrible disease, at the VERY least, your doctors should listen to you and discuss treatments that interest you. Sheesh!<br /><br />I'm sending you hugs and upping the prayers. <br /><br />Stay strong!Nancy K.https://www.blogger.com/profile/06061265740359266798noreply@blogger.comtag:blogger.com,1999:blog-1113305524165042046.post-52365835553779633222010-09-06T16:21:22.716-05:002010-09-06T16:21:22.716-05:00So, we are in the same leaky boat again...
This su...So, we are in the same leaky boat again...<br />This sucks. And sucks some more. Stupid cancer. <br />And the doctor needs to let you try what you want to try...not just what his standards say...I've gone up against this before...Do I need to come over there and run the gauntlet for you? Who the heck cares about permanent side effects? This whole thing is permanent for Pete's sake...<br /><br />I have airline miles, just say the word...<br />Love you...Robertahttps://www.blogger.com/profile/06191033387441287058noreply@blogger.comtag:blogger.com,1999:blog-1113305524165042046.post-24628814298637100392010-09-06T10:05:50.115-05:002010-09-06T10:05:50.115-05:00If you aren't heard, you don't leave the o...If you aren't heard, you don't leave the office. You sit there until you are heard. You pay (or insurance pays beaucoups of money, so it is your right to be treated to the best of the Dr.'s ability. You need to be satisfied that they "get it". They may not have all the answers, and they certainly aren't Gods.Celticspritehttps://www.blogger.com/profile/02564563906610127295noreply@blogger.comtag:blogger.com,1999:blog-1113305524165042046.post-13095378209037832682010-09-04T07:41:59.583-05:002010-09-04T07:41:59.583-05:00Eileen, do you wonder somtimes if you were meant t...Eileen, do you wonder somtimes if you were meant to "clear" the way for others with this awful disease? It is so frustrating to not be heard. Take care, I am so sorry to hear of the progression of the tumors. I'm praying that these other meds will help in some way!Dori Annhttps://www.blogger.com/profile/17926831606844256936noreply@blogger.comtag:blogger.com,1999:blog-1113305524165042046.post-12097090785888712512010-09-04T06:36:28.352-05:002010-09-04T06:36:28.352-05:00This is not good news, I am sorry to say, but not ...This is not good news, I am sorry to say, but not a surprise either, is it?! You have been your best advocate all along and you will make the right choices for yourself this time, too.Delighted Handshttps://www.blogger.com/profile/01289187765260532813noreply@blogger.comtag:blogger.com,1999:blog-1113305524165042046.post-51271129337551411922010-09-03T20:15:53.358-05:002010-09-03T20:15:53.358-05:00Very sorry to hear about the tumor progression . Y...Very sorry to hear about the tumor progression . Your experience is making me consider printing out any new scientific research I do on my own when dealing with DR.s ....being our best advocates is so...aspie but not being able to convince others we know what were talking about is also so aspie . (Do they think we get our info from an episode of Oprah ?<br /><br />Wishing you luck in convincing them that you might have done your own research considering your vested interest in the topic .krexhttps://www.blogger.com/profile/06928818585686147616noreply@blogger.com